Yo! March Is Trisomy 18 Awareness Month!

You do ever feel like God puts people in your path for a reason?

I am thinking this is for sure one of those instances.

Last week, I noticed a post on Facebook from a spunky mama named Marta. This post talked about March being Trisomy 18 Awareness Month…

…I have to confess, I Google it because I had no idea what Trisomy 18 was.

Now I know.

“A Trisomy is when the chromosomes do not divide correctly, and there is an extra copy of a chromosome that was not sloughed off.  So instead of one “X” for the pair of chromosomes affected, it is more like “XI”.  Chromosomes are numbered, and the number of chromosome that did not divide properly is how the Trisomy is named, as well as being known for the person who discovered the Trisomy, also called a “Syndrome” (syndrome meaning a pattern of symptoms, and in these cases, traced directly to the cause).  The most common Trisomy is 21, which is Down’s syndrome.  After that is Trisomy 18, also called Edward’s Syndrome, then Trisomy 13, also known as Patau’s Syndrome.  Most other Trisomies are not compatible with life, and are often miscarried or stillborn”

Meet Kayden. Is he a heartbreaker or what?

This handsome ten-year old is the middle son of Frank and Marta McClanahan of Baxter. Kayden was born in 2001, and was diagnosed with Trisomy 18. His younger bro Jaiden goes to school with my oldest, Jake.
My main reason for bringing this to everyone’s attention is that March is Trisomy 18 Awareness month.
This is important. And I want everyone to know about it.

I want my readers to get to know this amazing, strong, tight-knit family and their drive to make other parents aware of Trisomy 18. And even how sometimes the Doctor’s refuse to give these kids a chance.
For now, this is just a teaser. I want to get into the “meat and potatoes” of Trisomy Awareness this month in later posts. The McClanahan family has some exciting news to share, and well, they just plain blow my mind.
Stay tuned folks. This is going to be a fun and informative feature to work on 🙂
-B
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About Becky Flansburg


Becky Flansburg is freelance writer, blogger and virtual assistant living in Northern Minnesota. A dedicated mom to two beautiful kids, her veteran blog Franticmommy.com is filled with laughter and love about the joys parenthood. Becky is also committed to helping women realize their work-from-home dreams, enjoy life beyond the cubicle and find clarity in the work/life/family balance. Connect with Becky via her website, Twitter, Facebook and Pinterest

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2 Responses to Yo! March Is Trisomy 18 Awareness Month!

  1. Anonymous July 19, 2011 at 4:00 am #

    I like your quote “…moments that take your breath away”. Trisomy is very sad. I learned all about it when I was pregnant with my 2nd son. He had polydactyly in the ultrasound, so I changed my mind and had an amnio at the advice of the radiologist (who lied and said that he had short femur as well). Well, it takes a month to get the results of an amnio, so I had MUCH time to Google this stuff. My son is fine, thank God! He was born in 2005 with little tiny hanging 6th digits on his left hand and left foot. Other than that he’s perfect. He is 5 now. Anyway, I learned of how Downs syndrome became Downs syndrome and how it works. Trisomy 18 was the sadest trisomy to me. I am commenting because no one else has left a comment and I appreciate what you’re trying to do.

  2. ********** July 19, 2011 at 2:51 pm #

    THANK YOU so much for your story and your support. I really appreciate it!

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